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I’m at the Blood and Cancer Disease Center getting my tri-weekly Herceptin treatment. Three recliners down from me is a woman with a dark pink handkerchief tied on her balding head. I guess that she is in her 40’s. She looks drained, determined and focused — ready and only slightly anxious. She’s reading a Readers Digest, using her blood work report as a bookmark.
These are all things that I noticed only after I was able to draw my attention away from the contents of the bag hanging from her bag pole: three large syringes filled with bright red liquid.
Adriamycin — the Red Devil.
It is a strange revulsion I have to that stuff; a kind of subconscious revulsion that makes me feel antsy and nervous, like it might somehow get out of its bag and into my veins if I don’t keep a close eye on it. But while I can hardly tear my eyes away from from the syringes hanging there, I also don’t want to look at them, as if, perhaps, the vile stuff they contain might notice me staring at it.
As I consider the immediate effects of Adriamycin on the body and the long term effects it has had on my heart, and as I begin to recall my worst days with the stuff, I remember with total clarity why I decided to have this surgery coming up on Tuesday in the first place. My uncertainty subsides, although only slightly, and I begin to feel more like I am doing the right thing. I am a little less apprehensive and a little more confident.
The nurse takes down the bag with the syringes and sits down next to the woman in the dark pink handkerchief. The nurse begins her slow push, a saline drip diluting the life sucking fluid to a slightly less corrosive consistency.
I cringe and hope that I what I am doing is enough.
Written this morning (Wednesday, April 16) directly after my visit with Dr. Paul Smith, the artist and plastic surgeon I discussed the option of a mastectomy with at Moffitt. This is going to constitute the ending of my research project for my Social Constructions of Reality class. The title of this post was stolen directly from a Nine Inch Nails song off of the mixed CD given to me by Ryan before I started treatment. Please stop reading right here if you want to maintain the misconception that I’m not a wimp. Also, I blame Ryan for killing my car battery.
My vision begins to blur as I exit through Moffitt’s rotating doors, the doors that inhale and exhale cancer patients at an alarming rate. I glance briefly at some of the patients as I pass them, their various cancers wreaking various levels of havoc on their hosts, and wonder how they are suffering. A tall, skinny woman wearing sweatpants, a hoody and a surgical mask walks with difficulty toward the rotating doors. She looks young and does not meet my eyes, concentrating solely on the task at hand – walking, as I have mentioned, can become a shockingly difficult undertaking for the chemo patient. I look at the man assisting her and offer a weak smile, hoping that he can tell by my hair, my lack of eyelashes and my eyes that I sincerely hope things work out alright for the two of them. I wonder, turning back to watch as they are inhaled, if he can fathom what she’s going through, if he is able to give her everything she needs, and if not, if she has someone that can. I wonder what kind of cancer she has and if she is going to beat it or if it is already consuming her – she looks partially consumed, but perhaps it is simply her treatment.
I stand in the sun, waiting. I realize that I have a stranglehold on my travel thermos, both hands gripping the half full container as though it were the only thing keeping me buoyant. The two books I brought with me, The Social Construction of Reality and At the Will of the Body, are pressed tightly between my arm and my side. I direct my gaze toward the parking garage as a small blue car exits, and as it nears I realize that it is my car; the driver seems to recognize this too and returns my smile. He holds the door and closes it for me when I get in, I thank him and wonder if I should fumble for money or not, but he is off before I make much more of this thought and I hurry to get out of the way of the other cars.
I breathe in deep as I press down on the clutch and shift into first, exhaling as I switch to second. The transition is smooth, but my breath is shaking. “Mom wants me to call her,” I think as I stop and try to work my way around the parked cars to the traffic light. “Not yet,” I answer myself. Jaw clenched, I signal right at the light and stop to check if anyone is coming from the left. I realize that the light is green and a single tear escapes from my eye and slides slowly down my face. My grip on the steering wheel is almost as tight as it had been on my thermos, although it is less obviously a sign of anxious distress. I suddenly have the desperate urge to call Ben, but international calls are too expensive, and Avon is a poor source of income. I wonder who else I could call that would give me the same kind of relief and distraction, but there is no one.
I hold my breath and swallow hard, but it is of little use and salty tears leak down both sides of my face. ”Why am I upset?” I wonder to myself, “Why did he have to say ‘cancer bags?’ I don’t think that.’” I know that this is not my source of distress, though, and try to think about school. There is a lot to finish within the next seven days, but not enough to distract me from my thoughts. “Am I shallow? Is it really so important to have ‘normal’ breasts? Is it vain to worry about the resulting scars on my back? I don’t want scars on my back.” My mind begins to go faster as the numbness wears off, and as I turn onto Alumni Drive I begin to question the validity of my concerns, my selfishness, my body image, my god damn gender expectations and my fucking sexuality! “I’m angry. Why am I angry?” I ask myself as hot tears course freely down my cheeks and drip rapidly off my chin. I think back and try to remember if I was ever angry about cancer from diagnosis through chemo. I can’t remember a time when I was, and I wonder if now is an appropriate time to start having these feelings. After all, it’s just cosmetics, right? Isn’t being alive what counts? Isn’t that my prize?
I imagine myself in class trying to explain this part of my experience, trying to explain what I’m facing; “It’s a question of either not having to worry every single time something changes in my breast, not having to worry about a recurrence of cancer, and not having to go through 35 radiation treatments, or of having two ‘normal,’ soft, functioning breasts that I can feel and that are mine,” I explain to myself in the classroom. “It sounds simple,” I tell the faceless bodies in front of me, “but it’s not. It’s really not,” and, even in my mind, in front of the entire class, I break down crying. I consider screaming, wondering if this would help, but decide that the USF campus is probably not the appropriate place to take such action, even if I am driving with my windows rolled up.
My face is tight with salt residue by the time I pull into the parking lot off of Sago Drive. I go directly to the aisle closest to the library and find a parking spot right away, all the way at the end of the row. My shoulders start shaking again as I pull into the spot. Directly facing me is a parked car with two women in it. I wonder if they are watching me and I consider putting my sun shades in the windshield, but decide that the privacy of relative enclosure would only cause me to break down more completely. What I need right now is to write, to explain to myself what I am feeling about the prospect of having my breast removed and replaced with an implant, with something alien that I cannot feel.
I wipe the residual wetness from my eyes, take a deep breath, pause, and pull my computer out of its carrying case. I already know that I will title whatever I write after the song that is playing on my car stereo, and as I write, raw emotion articulated through my fingertips, I play the song over and over, listening to it countless times until finally my car stereo stops, flickers, fast-forwards, rewinds and dies. I realize that I have exhausted my battery and turn off the car. I feel silly, dumb and careless – what idiot sits in their car listening to the radio without turning it on to avoid killing the battery? I smile slightly as I breathe a sigh of relief; “This is normal,” I think to myself and sit unmoving for several minutes. I pull my seat forward and try to turn over the engine, but with no luck. I shake my head at myself and think, “I feel normal,” then pick up the phone to call my mom before I make that slightly embarrassing, slightly exhilarating call to AAA.

